well... what has happened since march of this year ...
1. on august 13th, we moved from that horrid 2 bed house to a 2 bed council flat closer to my family. the place has no stairs and a walk in shower n handrail ;) perfect for me. i love the place. it's lovely and quiet. had free paint from council too ;) budgeting loan paid for flooring, which is finally being done tomorrow by hubby's uncle
2. oct 2nd i had to unfortunately put down our jack russell Chorkie :'( hardest decision we have made, but at leat there's no more suffering, no more pain etc..
3. from a psych point of view, my antidepressants caused my heart probs - prolonged QT syndrome - so were changed. anti psychotics remain the same. still having counselling and in close contact with my CPN. started therapy and CBT and i go every 2 weeks .. i think it's helping, BUT tomorrow is my dead great aunts birthday, my deceased uncle's birthday, marks 1 month since we had to put down Chorkie our jack russell and marks 4 years since i was last raped :'( the nightmares and flashbacks are horrid. needing diazepam and my sleep is all over the place. been so down last week or so, between the psych probs, asthma n arthritis acting up and a friend fighting for her life in a foreign country .... update u when i can but she is very poorly in ITU needing a heart op to correct either an ASD or a VSD (unsure which) but she too unstable at present :'(
4. as u all know i have had multiple miscarriages and previously mentioned, i lost skye on jan 13th this year, well may 30th the hospital gimme a scan and confirmed i had miscarried yet again :'( taylor shae was gone at 12w 5d - furthest i have carried. FINALLY seen gynae in sept and swabs, bloods and internal scan done. all NORMAL so i am no further at knowing what is behind them all, nothing wrong found. will i ever be a mum?? why me?? why us?? i need answers but noone can give them to me :'(
5. diabetes - still on metformin 500mg tds. damn side effect of evil pred. but sugars seem to be well controlled except when unwell though. diabetes nurse happy with me. seen cardiologist regarding 'fits' and fainting episodes, says its cough syncope so nothing terrible wrong, thankfully n haven't had a 'fit' for bout 3 months :D
6. ITU admission again april/may - needed usual iv stuff as well as iv insulin and iv phosphate - never needed them before :( was in for 7 days. the care was fab. really impressed by the hospital as well as the team of doctors that helped. not forgetting the nurses of course ;) needed few admissions since then - no change there! - but no further ITU admissions as yet (touch wood!) got a new asthma cons whom i seen 26/9 she is awesome. however only this week my GP had the clinic letter! oh well, it was worth the weight. she says i am a steroid dependant brittle asthmatic both type 1 and 2. she has done baseline bloods and allergy bloods as well as ordered repeat lung function tests as my last one was 2011 showing only 47% predicted - eek! best PF 500 bout a year ago, but cant remember when PF was last above 400 if i am honest :( LFT was slightly abnormal so having USS liver next weds. she thinks it maybe due to my psych history of overdosing quite a lot previously. i take pain relief for my arthritis (as well as use a crutch) which kinda helps, but only take meds if i REALLY need to. the plan now is to have lansoprazole back to 60mg BD, gaviscon QDS, symbicort 400/12 2 puffs TDS instead of BD and to increase phyllocontin to 675mg from 450mg as last level in sept was only 4.8 from 3.3 in march. we plan to reduce pred by 1mg every 4 weeks till i see her again in clinic in december, starting on 18mg from this week. at next aoot cons will commence Spiriva and magnesium too :) very pleased with the plan :)
started up 2 asthma groups too - 'severe/brittle asthma support group' and 'asthma help!' one of the questions asked on there was 'if u cud have anything to cure asthma, what wud it be?' well i could honestly say if it were possible to be cured by love and support of friends then i wudnt have a care in the world :D so thank u all xxx
7. i have found even more friends from being in support groups n chatting on FB :) oh n my niece has started horse riding lessons, she's a pro already - only had 3 lessons so far, but is fine on her own, doesnt need leading. very proud of her. finished xmas shopping :) been watching halloween night on x factor. not impressed by many - prob bout 2 if lucky. stevi ritchie was crap usually, but tonight, WOW!! andrea to win tho i think ....
anyways, i'm off to take bedtime meds n try sleep. just want tomorrow over with :'(
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